Saturday, March 1, 2014

Rare Diseases Day...

Yesterday was World Rare Disease Day, a day for those living with a rare disease to come together, a day to spread awareness and a day to improve care for people with a rare diseases.

Did you know:

 There are about 7000 rare diseases
80% of rare diseases are genetic
100 million people world wide are affected by a rare disease 
About 50% are children
30% of children with a rare disease do not live past their 5th birthday
Receiving a diagnosis can take years, and often there is no cure

Lyla wore her denim jeans to show her support and her 'Team Lyla' t-shirt.  Lyla may not have an official diagnosis, but she is definitely proving to everyone that she is a one of a kind!

Please watch the video below

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